Meet The Team

These are the people who are working together to bring you this much needed resource.
Some of them have either experienced the illness themselves or cared for a loved one with the illness.
  1. Wendy Matthews - Chair
    Wendy worked as a registered nurse. She has run ME/CFS/FM Support Groups and served on local and national ME/CFS Boards and Committees. An advocate for families and those with the illness, she is committed to seeing a place of respite established.
  2. Phillip Letford - Trustee
    Phil Letford is an accountant who has volunteered time and expertise to national ME/CFS and other Not For Profit organisations. We are delighted to have his expertise and his support. He is aware of the need for education and support for carers and those with ME/CFS.
  3. Kate Donley - Manager
    Kate developed her business skills in the corporate world and now applies them in the NFP sector, working for a both a budgeting service then a national disability organisation. Kate is an experienced general manager and fundraiser with good knowledge of the disability sector.
  4. Adrianne Frame - Trustee
    Adrianne has a degree in Business Management. Realising the impact a place of respite would make on lives if available, she has come on board to help us raise funds. Adrianne has worked previously in the Not For Profit sector in fundraising and PR roles.
  5. Elizabeth Carmine Dick - Working Group
    Liz has a history of being involved in her community. For 9 years she has run the Hawkes Bay ME/CFS/FM Support Group, 9 years as a Work Based Training Coordinator, 4 years as a Regional Stroke Field Officer and 5 years as Manager/Coordinator Adult Literacy Aoteoroa.
There are an estimated 20,000 New Zealanders with ME/CFS and 25% of those are severely affected.
All are more limited in function than those with Multiple Sclerosis, Parkinson's Disease, heart disease and many other serious illnesses, averaging a functional score of under 10%.  See ME/CFS Survey results from Massey University NZ below.

20,000 may not sound many but when you compare that figure with those who have other disabilities in the NZ population, those with ME/CFS are a very under served group despite their number and low functioning score. e.g. 

Legally blind 11,500
Parkinsons Disease 4,500
Multiple Sclerosis 3,000 - 4,000
HIV/AIDS under specialist medical care 2,000

Those with ME/CFS have less access to medical care and research funding than any of the above.

Contact us!!